Saturday, March 14, 2009

Another day, another treatment

A friend saw this story on the BBC News website and thought I should see it.
** Oxygen therapy benefit in autism **
Oxygen treatment given under pressurised atmospheric conditions may improve symptoms in some children with autism, US researchers say.
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We used to get such nudges all the time. Friends, family, neighbors, strangers would say, "Autism, huh? Have you tried...?" (fill in the blank)
  • chiropractic
  • acupuncture
  • music therapy
  • floor time
  • chelation
  • PT
  • OT
  • CBT
  • nutrition
  • ABA
  • social skills groups
  • hypnosis
  • Please tell me what else you've been urged to try
There are so many therapies to try. And there is simply not enough time or money to try them all. You feel you'd go to the ends of the earth for your child. And you do. But you live in the real world with its real demands; time, money, job, insurance, other children, your health, your marriage, your sanity.

Some things work for some people. But there is no template for how to treat our kids. Everybody cobbles together something that works. For now. And switches it around next year.

The friend who sent this article is one of the few who has always been there for Diver and me. So I went to the BBC News website and read the article. That much I can do.
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  1. I don't mind the folks who send me articles here and there, though I can't think of a single time I've actually followed through on whatever an article was hawking.

    What drives me gonzo are what I call therapy zealots. They come after me, insinuating that if I don't get my son on their program, I am squandering his only chance at "recovery". We happen to have a big hyperbaric oxygen center in my area, and it seems that all of the center's clients have been sent out in cult-like fervor to convert the ignorant autie-mom masses. One of them badgered me so often that I got a note from my son's neurologist nixing the therapy as unproven and potentially dangerous for a child with seizure disorder. That finally got her off my back, but she and her friends have shunned me.

    Meh. At least I'm not spending $150 an hour for air.

  2. Hello, I followed your link over here. Your blog title is hilarious -- my 12-year-old autistic son is also my significant other! And no man compares ;)

    I am in southeast VA.

  3. I asked because your school situation is a nightmare. I mean, ours was, too, and eventually I had to hire a lawyer and take on the district to get a good outcome. But when I read your son's story......that is truly a nightmare. You are an awesome advocate.